I spent Thanksgiving evening at the UCL Ear Institute on an informative session organised by Deafness Research UK, about hearing deficiencies and their fundraising in securing radical improvements in the prevention, diagnosis and treatment of deafness and other hearing impairments over Tea, Cake and other refreshments.
Followers of this blog so far will know that I raised funds for Deafness Research UK whilst training for the Virgin London Marathon earlier this year, and have since returned to volunteer on a weekly basis in the last month.
My interest in the charity stemmed from being a sufferer of sensorineural hearing loss, a deficiency I largely denied throughout my childhood and only brought to my attention again more than 5 years ago during my PADI Open water diver medicals, which involved a hearing assessment.
I cannot hear high frequencies as well as the average person, and do struggle hearing in noisy environments. Although I don't live with a hearing aid, there has been times I have been told it is a worthwhile investment. I didn't understand the ways of the deaf, and never thought about it much until I saw a few ladies on the train into london, speaking in hushed tones, louder laughes and big gestures - it wasn't charades they were playing!
I nodded many times during this evening when presenters (such as the Chief Executive, Individual Giving Assistant) brought up common issues such as pretending to understand something when they didn't, a preference for restaurants and bars with carpet, requests to turn up the volume of the tv, processing a sound by lip reading rather than hearing it, and when in fact, every hearing disorder is different.
We got a taster of the Bionic Ear Show - which is a fun and interactive initiative roadshow the charity conducts in schools and workplaces free of charge to bring awareness to this delicate instruments of ours that sticks out on both sides of our heads. Sound clips of what people can hear with NHS sponsored hearing aids at different levels, really made me realise how lucky I am to have the hearing levels that I have got. Some people who have lost enough 'hairs' inside their cochlea - to them, they can't even make out the sound of trumpets. It will all sound like hushed drums!
The evening concluded with a final presentation by UCL scientist Sally Dawson of how the funds from the charity has allowed her team to get started on research examining the genetic effects of adult onset hearing loss. The link for me was that funding was often non-existent for specialised areas such as hearing, and in order to get research to a level where it would be supported by larger medical funding bodies such as Wellcome Trust, this is where funds for Deafness Research UK comes in. (and indeed, having visited the grand premises of Wellcome Trust, vs DRUK's offices, I am aware of the scale)
Over refreshments, I got to speak to more of the charity's staff and also seeing supporters purchase some of the Christmas cards to help raise more funds - this is something that I helped with over the last month - click link here for the online shop.
It is good seeing the results of hard work - and I wish the Best for Deafness Research UK and hope it can bring greater awareness to all about the importance of hearing as it has to me.
I now appreciate the ability to enjoy music as much as I can - and under circumstances, bringing my earplugs along to lower the possible damage it can cost. Because, once it's gone, it's not going to be ever as perfect as natural hearing.
The drums in a Jazz set - Duc des Lombards, Paris |